Carer Online Hub
Welcome to Speakup for Caring. This is a web page to support carers and people in mutual caring situations to:
Gain knowledge about Care Treatment Reviews
Recognise mutual caring
Share life treats
Share the philosophy that 3 good things each day improves life quality
Talk about person-centred services
This is not a web page to use to name and shame people or organisations. It is a web page to look at positive stories and work out how to make services better and more equitable for everyone who uses them. It’s OK to be a critical friend, but not to use damaging or offensive comments.
If you would like to write an article for this web page, please send this to Sally Wormley at firstname.lastname@example.org
Here is some information about CTRs/CETRs
What is a CTR?
Care Treatment Reviews (CTRs) are for people with learning disabilities, autism or both, who are in hospital for mental health issues or because their behaviour is challenging. It’s also for people with learning disabilities, autism or both, who live in the community and may be at risk of going into a learning disability or mental health hospital.
A CTR finds out about four main things.
1. Is the person safe?
2. Is the person getting good care now?
3. What are the plans for the person’s future?
4. Can their care be given in the community?
CTRs should be very person-centred. They should be personal:
Person centred and family centred
Seeing the whole person
Open, independent and challenging
Nothing about us without us
Living life in the community
There should be ‘Nothing about Us without Us’.
The person and their family carer (if the person wants them to take part) should be fully involved in getting ready, taking part in the meeting and should be aware of what will happen afterwards. CTRs are all about the person’s care and what is really important to the person.
A panel of three people will find out how the person’s care is going and check that the care they are getting meets their needs to have a good life in the community. The panel is made up of:
Chair person. This may be a commissioner
Expert by Experience, who has experience of services
Clinical expert – someone who is qualified in healthcare
The person who’s CTR it is has to give their consent for a CTR and can invite anyone they want to take part. It’s a good idea to invite people on the consent form in the CTR planner.
The care co-ordinator for the person could help with this.
For people who are not able to give consent, a best interest meeting should be held, to agree for a CTR to happen.
It’s a good idea for the person to fill out the ‘My CTR Planner’ and take it to the CTR or CETR on the day. It will help them think about their CTR or CETR before the day, and what they want most from their life. If the person cannot do this, a family carer or someone from the person’s trusted circle could fill this out on their behalf.
You can download the ‘My CTR Planner’ and other documents from www.england.nhs.uk/ctr
A CETR (Care, Education and Treatment Review) follows the same process as a CTR, so you can still use the planner, but these are for children and young people.
One Page Profiling
A one page profile is a great way of telling people at a glance about the important things in the life of the person you care for and how best to support them. It should help carers keep a service that is person centred. Whenever things change, please update the profile.
It’s amazing what you can fit on one page - you can be very descriptive. For example, don’t just say “likes music” - say exactly what type of music.
It is a good idea to have lots of copies, one for family carers, one for the person, one for any services they are in contact with and one for an advocate and anyone else in their trusted circle of support. We’ve included an example of this.
Communication Grab Sheets
Through our Care and Treatment Reviews, we have a greater understanding of the need for a person to have a communication passport and communication grab sheet. The self-advocates we support vary in how they can communicate and this can change on a daily basis, depending on mood and other outside factors. A communication grab sheet is a bit like a one page profile. It tells people at a glance how best to talk to and communicate with a person, and how best to support them.
For example, do they need signs, symbols, apps or photographs to help them to communicate their needs?
A communication passport goes into more detail and gives a more in depth view about their level of understanding and how best to communicate with the person.